Kaitlyn was born with Agenesis of corpus callosum. Essentially, she is missing portions of her brain which cause seizures and severe developmental delay. This requires her to have a feeding tube and total nursing care. Her parents, Tammy and Greg, cared for Kaitlyn at home for the first four years of her life, but after a bad case of pneumonia in 2006, a patient advocate in the hospital connected them to home healthcare. After years of sleep deprivation and increasing medical complexities, this was vital to Kaitlyn’s health and to the well-being of their family. She has been receiving home healthcare now for 16 years. While Kaitlyn doesn’t speak or walk, she is a happy girl surrounded by a loving family and nurses who adore her and keep a close eye on her condition. Home healthcare has enabled Kaitlyn to stay at home with her family where she belongs, with one-on-one nursing care that has made a significant difference in her quality of life.
